Hello Team Family and Friends
The latest update in the noggin-gone-wrong saga is that surgery is scheduled for next Wednesday (25th March). Last time, I spent one night on the recovery ward then came home - hopefully it'll be similar this time. I imagine they'll want my bed as soon as they can get it, given corona virus overload.
On that topic, the hospital has said that we need to be ready for the date to change, subject to the CV situation. But at the moment, we're on (subject also to me, the neurosurgeon and the anaesthetists not going down with it,,,). I'm keen to have the surgeon who's done the last two operations - he should be quite familiar with my right temporal lobe by now :)
Stay well everyone
Big love to all,
AA xxxxx
Sorry the comments still don't work on this blog, I might move it - watch this space.
Thursday, 19 March 2020
Tuesday, 10 March 2020
Ding ding, next round
Hello
An update: I have to have another (third) round of brain surgery. This is extremely annoying.
Best case scenario: They get it all out.
Next best scenario: They get some out and what's left can be radiotherapy-ed.
I don't relish the idea of more radiotherapy - it really wiped me out last time. Compared to radiotherapy, (for me) chemo is a walk in the park. But since the chemo has stopped working, there aren't that many options left.
HOWEVER, as my lovely Macmillan nurse pointed out, they wouldn't be offering me surgery unless they thought there was a chance of success. So it's actually a good sign (within the limits of horrible circumstances). And if they can't get it all out, but getting some out opens up more treatment options, that would be better than nothing.
It's the same surgeon as the last two times, so he's pretty familiar with my right temporal lobe now.
I'll post more updates when I can.
Bye for now x
An update: I have to have another (third) round of brain surgery. This is extremely annoying.
Best case scenario: They get it all out.
Next best scenario: They get some out and what's left can be radiotherapy-ed.
I don't relish the idea of more radiotherapy - it really wiped me out last time. Compared to radiotherapy, (for me) chemo is a walk in the park. But since the chemo has stopped working, there aren't that many options left.
HOWEVER, as my lovely Macmillan nurse pointed out, they wouldn't be offering me surgery unless they thought there was a chance of success. So it's actually a good sign (within the limits of horrible circumstances). And if they can't get it all out, but getting some out opens up more treatment options, that would be better than nothing.
It's the same surgeon as the last two times, so he's pretty familiar with my right temporal lobe now.
I'll post more updates when I can.
Bye for now x
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