Friday, 28 September 2012
A day in Radiotherapy
Today I thought I'd write a bit about what actually happens during a radiotherapy session. I know I feel much better about all this stuff the more it's demystified, and maybe writing about it and explaining it is the ultimate demystifier (no, not demister, that's something different. DemystiFIER).
A bit of context-setting first. Every morning, I look at my appointment time, and make a plan. An eating plan. Basically, I have to take my tablets an hour before the session, and they have to be taken on an empty stomach, which means not eating anything for two hours before or an hour after. So I count backwards from my appointment and work out an eating strategy that fits in. I have resisted the temptation to use Excel to create a daily critical path project plan. Then, when the time is right and I've strategically eaten/not eaten, I stomp/splosh/stroll over to the Christie and head straight for the Radiotherapy department. I hand in my appointmnet card and get 'queued in' (the technical term?), then she writes down my apointment for the next day. This is one of the more frustrating aspects of the whole thing - that they only tell me my appointment time the day before, which makes it difficult to plan other things. However, I get my Monday appointment time on a Friday, i.e. three whole days in advance, so I can actually plan things. Ha! Feels like I beat the system a little bit every Friday!
So then I sit and do a bit of knitting while I wait to be called through to suite 8 ('my' machine - it looks like the one in the photo). When they take me through, they always check my details first, even though we all know each other pretty well by now. Then I lie down on the bed with my head on my own personal bespoke head rest, they put a cushion under my legs (not bespoke), and they put my mask on me. The mask is designed to make sure my head is in exactly the same place every time. It was made for me in a way that reminded me a bit of year 9 art: they used strips of plaster bandage dipped in warm water to mould my face and round the top of my head, my ears, and under my chin, then used the plaster of paris mould to make a clear perspex version (that bit was not like year 9 art). So the mask goes on my face (it's open at the mouth and nose), and then they clip the mask to the bed. This was pretty horrible the first couple of times - I'm not a claustrophobic person, but it felt pretty claustro in there..I'm used to it now though. Then, the two (young glamourous) radiographers spend two or three minutes shouting out some numbers, then they leave the room - they control the machine from the computers outside. I'm on the bed for about 5 minutes, and I know when the machine is on when I can hear a sort of humming buzz. Nothing touches me, it doesn't hurt, there's nothing to it really. Then they come and unclip my mask, and that's it.
So that's the routine, and the routine-ness of it is reassuring - it's starting to feel quite normal now. I'm even quite enjoying having some structure to my days and weeks - while I was recuperating from the operation, days and weekends and weeks were quite formless, but now, weekends and weekdays are different, and on weekdays, I generally do my own thing in the morning, have lunch (strategically), then head out on my stomp. I'll take my camera in some time next week and take a snap of the mask to show you. But for now, that's it. Thank you so so much for all the glorious comments, I've enjoyed reading them so much! And as you can see, by popular demand, I've stuck to the macro-blog format (for now...). Until next time xx
Tuesday, 25 September 2012
Stomping through puddles

At the moment, I'm doing 6 weeks of intensive radiotherapy with concomitant (the technical term!) chemotherapy - they're designed to complement each other. 'Intensive' means every day - I go every day, Monday to Friday, to the lovely Christie hospital in Manchester for a session of radiotherapy, and the chemotherapy consists of taking 4 little tablets at home (the tablets are 7 days a week). As an aside, one of my first observations about radiotherapy is that all the radiographers are very young and glamourous. Intrigue! So far, I've been walking over to the Christie, which is about 2 miles away from our house. The exercise feels good, and sometimes I listen to music and sometimes I just walk. Stephen came with me the first couple of times, but I've started going on my own now. I like going on my own because it fits better with my self image as Independent Woman Taking Things In Her Stride. And I just like walking in general. Although I am aiming to go on my bike eventually. We'll see. Anyway, today there were severe weather warnings, and 4 inches of flood water outside our front door. So I put on my wellies and Stephen's waterproof coat, put my brolly up, and headed off, having promised to call for a lift if I needed rescuing. However, far from needing to be rescued, I had a marvellous time stomping through puddles and listening to the satisfying pitter patter of raindrops on my rather fetching new Accessorize brolly. I had an early appointment today, so they saw me on time (I've realised that the later the appointment, the later the machines are running). Each session takes about 15 minutes in total, so I was in and out pretty quickly today. After my first week of treatment, I'm feeling pretty good - my appetite is a bit subdued, but otherwise I feel quite normal. Long may it last! With regard to the appetite, I'm seeing it as a clever balance to the weeks I was on steroids around my operation, during which I felt compelled to eat anything and everything I could get my hands on! So this is the first installment of my brain blog - future installments will be somewhat shorter. (Stephen thinks I should adopt micro-blogging principles and commnicate in 140 characters. Hmm.) But anyway, this one is just for practice and to kick us off. I'll blog again soon! x
Subscribe to:
Posts (Atom)