Friday, 28 September 2012

A day in Radiotherapy


Today I thought I'd write a bit about what actually happens during a radiotherapy session. I know I feel much better about all this stuff the more it's demystified, and maybe writing about it and explaining it is the ultimate demystifier (no, not demister, that's something different. DemystiFIER).

A bit of context-setting first. Every morning, I look at my appointment time, and make a plan. An eating plan. Basically, I have to take my tablets an hour before the session, and they have to be taken on an empty stomach, which means not eating anything for two hours before or an hour after. So I count backwards from my appointment and work out an eating strategy that fits in. I have resisted the temptation to use Excel to create a daily critical path project plan. Then, when the time is right and I've strategically eaten/not eaten, I stomp/splosh/stroll over to the Christie and head straight for the Radiotherapy department. I hand in my appointmnet card and get 'queued in' (the technical term?), then she writes down my apointment for the next day. This is one of the more frustrating aspects of the whole thing - that they only tell me my appointment time the day before, which makes it difficult to plan other things. However, I get my Monday appointment time on a Friday, i.e. three whole days in advance, so I can actually plan things. Ha! Feels like I beat the system a little bit every Friday!

So then I sit and do a bit of knitting while I wait to be called through to suite 8 ('my' machine - it looks like the one in the photo). When they take me through, they always check my details first, even though we all know each other pretty well by now. Then I lie down on the bed with my head on my own personal bespoke head rest, they put a cushion under my legs (not bespoke), and they put my mask on me. The mask is designed to make sure my head is in exactly the same place every time. It was made for me in a way that reminded me a bit of year 9 art: they used strips of plaster bandage dipped in warm water to mould my face and round the top of my head, my ears, and under my chin, then used the plaster of paris mould to make a clear perspex version (that bit was not like year 9 art). So the mask goes on my face (it's open at the mouth and nose), and then they clip the mask to the bed. This was pretty horrible the first couple of times - I'm not a claustrophobic person, but it felt pretty claustro in there..I'm used to it now though. Then, the two (young glamourous) radiographers spend two or three minutes shouting out some numbers, then they leave the room - they control the machine from the computers outside. I'm on the bed for about 5 minutes, and I know when the machine is on when I can hear a sort of humming buzz. Nothing touches me, it doesn't hurt, there's nothing to it really. Then they come and unclip my mask, and that's it.

So that's the routine, and the routine-ness of it is reassuring - it's starting to feel quite normal now. I'm even quite enjoying having some structure to my days and weeks - while I was recuperating from the operation, days and weekends and weeks were quite formless, but now, weekends and weekdays are different, and on weekdays, I generally do my own thing in the morning, have lunch (strategically), then head out on my stomp. I'll take my camera in some time next week and take a snap of the mask to show you. But for now, that's it. Thank you so so much for all the glorious comments, I've enjoyed reading them so much! And as you can see, by popular demand, I've stuck to the macro-blog format (for now...). Until next time xx

7 comments:

  1. Good oh. Why can't they give you a weekly schedule. Never mind I'm sure that it will all add to your planning skills, Love Lis

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  2. Yay - So happy about the macro blog! Great that you're getting some quality knitting in too! Can't wait to see your mask! xxxxx

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  3. Like Auntie Nicola managed to lose my first comment. Here goes for second attempt.. . Hello my warrior princess. Love all the detail. Can now picture who is receiving your smile and when.As you know i need to know everything! Week and a half of treatment already done and dusted . . Lots of love as always x

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  4. Don't we need pictures of the glamorous radiographers too?

    You'll never guess....? I'm tidying up this weekend and find a box of old records. There is Barclay James Harvest! Coincidences like that are against the laws of thermodynamics.

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  5. Looking forward to the photos of the radiographers, as suggested above ;)

    Mariken XX

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  6. Hello beautiful girl; if you are reading this, then I've finally penetrated the "invisible" response shield to join the wonderful world of "Blog"; if not darn it I'll keep trying! Lol. Your radiotherapy update reminded me of my visits with my Sis; all frightening to me; but perfectly normal to her. She didn't knit but entertained me with stories and introductions to all the other friends she had made who were waiting with her for their treatments; she knew all their names; how long they had been going and who wore wigs! I certainly couldn’t tell they all looked so stunning and glamorous. Also; I’m liking your 1 day Strategy planning; you should come and work in our Programme Office; we have people you have been given advance timelines of 2014 who 18months later still can’t give us a clear plan! Thank you for sharing your experience; you are a brave and wonderful girl and we love you loads xx

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  7. Hurrah.....I've cracked it; I'm dashing over to tell you Mum xx

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